Sunday, May 29, 2011

My heathens....

A fun time was had by all!

Enjoy your weekend!

Friday, May 13, 2011

Thinking Out Loud (Sort of)...

     So the school thing.... temporarily (or maybe permenantly?) on hold. I've been thinking a lot about that today. I don't like how it feels to not keep going but I know right now it is the best decision.... especially that specific degree. I'm logical enough (most days) to know that the career path wouldn't work with my chaotic children. The thing is... I hate change. Even change that is for the best. I hate starting new things, ending things, new places, new routines... all change really. I don't know for sure whether this stems from my rather severe anxiety issues, or whether this is something entirely independant. Something to think about....

     Back to the school thing. That career path just wouldn't work. I knew that. I knew that long before it was pointed out to me several times. Right now I can't see a career path that would work. I have two kids on the autism spectrum, one with emotional/behavioral issues, and a baby. I can't afford daycare (and would never launch my crew at a poor unsuspecting daycare provider). I was thinking today that maybe I could work on a degree in child psychology. Even if I never use it for a career path it will help me understand my children and help me make better decisions for them (and with them). Once they are all in school maybe I could work for Early Intervention or something like that.

     On a completely different note, today with Joelene was a complete nightmare. Jolie has been spending a lot of time alone everyday in her room. Normally I don't mind this but its starting to get excessive. The weather today is amazing so I told her to go outside... and that's when the nightmare began. Peter was out playing on the (newly) enclosed swingset/sandbox and I told Jolie to go play with him. My mother and I were right on the deck so it wasn't like she was alone... but she lost it. She screamed and cried for over 4 hours. She hit, pushed, screamed, sobbed, was unbelievably hysterical over a fear of bees. I think we saw 2 bees the entire time. When logic prevailed she began her screaming again about she didn't want to be here and just wants to watch TV... which was the actual problem to start with. We made it through the tantrum... and I am happy to report that she is playing outside happily by her own choice right now. I guess it seemed like a good choice seeing as how I flat out refused to turn the TV back on

     Right now Monkey is napping and the other three are outside playing. I am absolutely loving it!

Oh! Peter rode a tricycle today... I didn't get any pictures but I will soon!


Wednesday, May 4, 2011

That's awful! I'm so sorry!

I was reading some autism related blogs today and in one they were discussing the stigma that comes with being diagnosed with an ASD. It's not nearly as bad as the stigma that comes with an emotional disorder, but it's still commented on in a negative fashion on a regular basis. Now don't get me wrong, I'm actually very used to hearing about how bad my genes are, how awful it must be for me, and how sorry people are that I have two autistic children.

Now that being said....

About three days ago a nurse from Boston Children's called to confirm some details about Xander's upcoming surgery. She was going over family medical history and asked if anyone in his immediate family had any neurological disorders. When I asked what would count as a neurological disorder she listed autism as an example. I told her that two of his siblings have been diagnosed with PDD-NOS. The line went silent and then she said... "That's awful! I'm so sorry!". This actually shocked me into silence. Most of the time when I hear this its from a "well meaning" family member, a stranger, one of the kids' teachers... but I've never heard it from a member of the medical community. Most of the time I easily respond with "I'm not sorry, they're perfect.". Not this time. This time I sat there for a few seconds speechless. We continued the call with no other 

Don't get me wrong.... she was awesome. She was so thorough in her explanations that I got off the phone truly comfortable with the entire process. I don't see what she said as something bad, something wrong, or a negative mark on Xander's surgery experience. As a matter of fact I had put it out of my mind and forgotten all about it until I read that blog this morning. 

I think on of the things I'd like to see for the autism community is for reactions like that to stop. Seriously people... you want to know how to help people with an ASD or parents of a child on the spectrum? Stop those reactions. Believe it or not, not a day goes by that I don't wonder if my genes are what caused my children to have these challenges. Parents like me don't need you to point that out. We're reasonably intelligent people, we know. Personally, I feel blessed most days.